Gold for India: IMDRC trained participants shine at World Boccia 2024
Anjali Devi trained at IMDRC and and went on to win a gold medal for India at the World Boccia Challenger 2024 in Cairo, Egypt.
Sunil Chaudhary
Governor HP appoints Vivek Agnihotri to raise awareness of Muscular Dystrophy in India
Vivek Agnihotri is the new ambassador for Muscular Dystrophy in India, announced in Shimla on February 22, 2024, highlighting efforts to raise awareness and improve treatments for muscular dystrophy.
Vedant’s Journey: Overcoming Challenges and Pursuing Success
Vedant’s life has been an incredible journey, filled with determination and a strong dedication towards building a successful career. Despite facing unique challenges, he has always found inspiration and motivation from his brother / friend Shubham. Vedant, who is on…
Sarepta’s Duchenne gene therapy fails to meet primary endpoint in pivotal trial
Sarepta Therapeutics said Monday afternoon that its gene therapy for Duchenne muscular dystrophy failed to improve muscle function compared to a placebo in a large clinical trial — likely a major disappointment for patients and doctors who have been desperately…
In Loving Memory: Virender Kalra
Virender Kalra, a soft-spoken warrior against Emery-Dreifuss Muscular Dystrophy, and a senior manager at Canara Bank Rajauri Garden Branch New Delhi, has left an enduring legacy. Despite losing his parents, he brought joy to every celebration.He has loving brothers and…
Success Story of Karan Vaidya
My life’s journey as a Duchenne Muscular Dystrophy (DMD) warrior began from the day I was born, marked by special challenges and unwavering determination. As a child, I faced my first hurdle with a bent left leg, leading me into…
IAMD @ Mann Ki Baat 100th episode
Vipul Goyal General Secretary of Indian Association of Muscular Dystrophy was invited at National Conclave Mann Ki Baat @100 Mr. Vipul Goyal on the live panel discussion on Times Now.#Live Screening at UN HQ. To view the live panel discussion, click here.…
A message from our President on Rare Disease Day (28 Feb)
Honourable P.M. Modi talking about IAMD and Muscular Dystrophy
Salaam Venky in theatres on 9 Dec 22
Starring Kajol and Vishal Jethwa in the lead roles, the film portrays a true story of a mother and her son Venky (played by Vishal Jethwa) who has Duchenne Muscular Dystrophy. Salaam Venky is expected to promote further awareness of…